Lymphedema Treatment: November 2011

November 30, 2011

About Breast Cancer: Chicago Loses Margaret Daley To Breast Cancer

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Breast Cancer

Breast Cancer

Symptoms / Diagnosis

Treatment

Daily Life

From Pam Stephan, your Guide to Breast Cancer

Maggie and Richard Daley served the city of Chicago for 22 years and were married for almost 40 years. On Monday, Chicago said its final farewell to a former First Lady of the Windy City.

Maggie Daley Fought Metastatic Breast Cancer

Margaret Daley, former first lady of Chicago, has died at age 68 of breast cancer. Known as "Maggie" she was married to former Chicago Mayor Richard M. Daley and had three children and three grandchildren. She had been diagnosed with breast cancer nine years ago. Read the full article.

See More About: breast cancer survivor story celebrity

FDA Removes Avastin From Use For Breast Cancer

For many metastatic breast cancer patients, Avastin seemed to be their last hope. Now, unless they are on Medicare or have the resources to afford between $88,000 and $100,000 a year a year for the drug, that hope is beyond reach. The news came Friday as FDA commissioner Dr. Margaret A. Hamburg handed down a ruling on this targeted therapy.

See More About: breast cancer medicare metastatic

How Breast Cancer Spreads

Most cases of breast cancer are now caught before it goes beyond the breast. About 10% of all breast tumors are not found until after they have shed cells that traveled to other parts of the body. Metastatic cancer is more difficult - but not impossible - to treat. Women with metastatic disease are living longer, thanks to better detection and targeted treatments.

See More About: breast cancer treatment metastasis recurrence

Metastatic Breast Cancer - Statistics, Diagnosis, Treatment

Dr. William Gradishar explains that a diagnosis of metastatic breast cancer can be treated to extend life and create the best quality of life possible with this condition. Dr. Gradishar is an oncologist at Feinberg School Medicine at Northwestern University in Chicago, and was familiar with Maggie Daley's case.

See More About: mammogram findings breast cancer diagnosis metastatic disease

Breast Cancer Ads

November 29, 2011

Should You Drink for Your Health?

Tuesday , November 29, 2011

In This Issue:

  • FDA Rejects Avastin for Breast Cancer
  • Does Chemo Cause Mental Fog After Breast Cancer?
  • Conquering Fears of Recurrence

Should You Raise a Glass
This Holiday Season?
Some studies show that alcohol has health
benefits; others refute the claims. Take the
quiz to see how it affects breast cancer risk.
Also See:
  • Nutrition Therapy in Cancer Care
  • Understanding Palliative Care
  • Staying Connected During the Holidays

Health News & Features

FDA Rejects Avastin for Breast Cancer
The FDA has revoked the use of Avastin for late-stage breast cancer
but will keep it on the market for other cancers. Reason for decision.
Also See:
  • 'I'm Too Young to Get Breast Cancer'
  • Treatment Causing Scaly Skin, Dry Eyes. How Do You Cope?

Does Chemo Cause Mental Fog After Breast Cancer?
New research shows that even breast cancer survivors who didn't undergo
chemo may experience a mental fog similar to 'chemo brain.'
Also See:
  • Breast Reconstruction May Quickly Improve Quality of Life
  • Vaccine for Breast Cancer Shows Promise

From The WebMD Network

• Breast Cancer Prevention

From The Cancer Realities Blog

Conquering Fears of Recurrence
Fearing cancer's return is a natural reaction. See how
others have dealt with it and post your own comments.

Read more on the Cancer Realities blog.

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November 27, 2011

Breast Cancer Newsletter from BellaOnline.com

Here's the latest article from the Breast Cancer site at BellaOnline.com.

Thermography and Breast Cancer
Thermography is a screening method that measures differences in temperature of a woman's breast tissue, and often can detect subtle, pre-cancerous changes long before they appear on a mammogram. Should you consider thermography?

http://www.bellaonline.com/articles/art32605.asp/zzz

Please visit breastcancer.bellaonline.com for even more great content about Breast Cancer.

To participate in free, fun online discussions, this site has a community forum all about Breast Cancer located here -

http://forums.bellaonline.com/ubbthreads.php?ubb=postlist&Board=130

I hope to hear from you sometime soon, either in the forum or in response to this email message. I thrive on your feedback!

Have fun passing this message along to family and friends, because we all love free knowledge!

Gail Armanini, Breast Cancer Editor
http://breastcancer.bellaonline.com

One of hundreds of sites at BellaOnline.com

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November 23, 2011

About Breast Cancer: Happy Thanksgiving - Remember the Cranberries!

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Breast Cancer

Breast Cancer

Symptoms / Diagnosis

Treatment

Daily Life

From Pam Stephan, your Guide to Breast Cancer

As a kid, the best part of Thanksgiving - other than going to my grandparents farm - was the cranberry sauce. Who could beat having jelly at breakfast, lunch and dinner? Thank goodness cranberries are actually healthy food!

Good Foods That Fight Cancer

A healthy diet builds up your immunity to disease and helps you recover, if you do get sick. With Thanksgiving you get an opportunity to eat a wide variety of healthy foods. Make some smart choices this year, and don't skip the cranberries!

See More About: healthy diet vitamins low-fat diet

Drink Yourself to Health

Among the many temptations at a bountiful holiday table is alcohol - and you may be offered a taste or two. Decline these graciously and try the buzz-free versions instead. Any kind of alcohol increases your hormone levels, which puts your health at risk. Head for the water, tea or coffee instead.

See More About: breast cancer prevention risk factors alcohol

FDA Removes Avastin From Use For Breast Cancer

See More About: breast cancer medicare metastatic

Life After Treatment, Recovery, Hair and Skin Care, Changes

You completed treatment, now what do you do? Read about living in remission, having regular oncology checkups, making progress during recovery. Rebuild your health and take care of your chemo curls and dry skin. Take charge of changing your diet, start doing regular exercise, take your follow-up medications. How you can make life changes, and how you can give back to the cancer community.

Breast Cancer Ads

November 21, 2011

National Lymphedema Network End Of Year Campaign

Hi, just a reminder that you're receiving this email because you have expressed
an interest in National Lymphedema Network. Don't forget to add nln@lymphnet.org
to your address book so we'll be sure to land in your inbox! You may unsubscribe
http://visitor.constantcontact.com/do?p=un&mse=0010opz9yIv187Lo9kKxSCmtEkUJhUJJEis&t=001s87hT5-H4eqVSFIzoVTjfQ%3D%3D&reason=001IqezpQbqEsU%3D&llr=uwropkcab
if you no longer wish to receive our emails.

National Lymphedema Network [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1bZdozG1ETMS1TaZEDxlSkJtz_Vtkx2Jla0JNdm5THHCDWczM-u6INO8ZUXbZJlVof_QMHaFksPlgbZEoPy8lNQ3BqulZttwO93W3woPAgxuA==]
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National Lymphedema Network
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National Lymphedema Network [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1bmp9DFWV11Imf-5MKnAjD-m2rag8NOgzrVUbSaeKtgTol_RgpPSKNWEgofxgW7KFKWHePbDGx1cqHtHemr0m-JmRFB3TlfHrE=]

Donate Now [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1b4j0lihVfnj8vITCHLUatFxPO7OlsLRQt8dl2fZYgFvHKH1T3y7_8iYRoXy-4mvdC_LzO5ILauK_XmZAb4C0g2EcphVEqMHgSHorOjRtHF55AyrcGS4aF2_i102PNcCQk=]
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Position Papers:

Diagnosis & Treatment of Lymphedema [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1bCuThhBixJ1l3gucXF3RX8r6lO_gWYx6vDjESotjMVaIxqhA8gM3hZO9b9tEfzk6l3nhah0SSRPsd5d1czn-aBnVNXpKvmOmBGA_qDhMWlUEGYIKnVeJ_DXEra1aVlc2B6TLOLZ-JhyA==]

New! Breast Cancer Related Lymphedema [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1atcI8NtfWnJPlPqp-3MBhvAnEnWvLzDOF5TQUqY_-bDJdte-Jm2MB_tB3NiOUTigD-81OIkAuzKyMXN0NjmBU78-Z1D8ZY463TL_argZMD9FphaQwzTtJbfMHItDgCnjc=]

Risk Reduction [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1ZdFfl-c9XDBGk8_ZDPX9yEcKhTgM4aIy4i7Tz-b1gHAD_C2HYOHZ3kjgem36Ciyo1W1n3lEAv4M6BAszw0Q7uSqi1CmBC5z0lwIcJ3atbvNWq7VR39uuK5CVwryWAfajYKjkDA7sVSrj5ronhD8iAwn-YNbG3kIQBA8FR9xaYM2zEA9h60MfiH1IXxXEgNfTQ=]

Exercise [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1a6X7s9AhfyBvoM2hKxaowNPh9UGzua-yfILHNj-2P84J75OgNgJo8L7wFo1BpyRK1cujgxOuv64vuOVnPRw1Ysy7MRY6BgYJlswye9W_7d1s_a60beML68_579DZuQRWrSL_8YWqP2ezjkAj7WZEAuUecqb2YZ8cr9NtjgCFjVpi9gudQj65-hsj46U91ALyI=]

Air Travel [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1Yam9ezdR3qq2FMbN-7bn1I8TfGj4iZ5XSZiHwFREEGt-C7zPKKsOx-8x6nuyvYDszbUYAM8hfMHpj-jzcx5QeOAIkV8Gn70JlAte8-GA84g8VbwE67r5rB-EkLRtF_qPmWWnlRXLXHtVimxOHdJfgj6VVRzFVgqGAEuXN7VVsQp9WAHjvV-6yycmSocWtV6n0=]
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Quick Links:
National Lymphedema Network [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1bmp9DFWV11Imf-5MKnAjD-m2rag8NOgzrVUbSaeKtgTol_RgpPSKNWEgofxgW7KFKWHePbDGx1cqHtHemr0m-JmRFB3TlfHrE=]
Special NLN Membership Campaign [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1YrfBgbbN1kb175ligzJ7Q0sPsckwYCiH5DLZtNTlp-ALmEBKZX9SpxCSBIg3bmfOo5bxuE_ANMFFCXLu9MmxR_mh1fa4XTXk882zmmFnbxKpnBY0hbNP03tlyhRH8gp7-ZIv3QH5eRlT7K_1ZuK_vZTqW6V7HusFk=]
NLN 2012 International Conference [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1ZXXpWb7KTSO0Fp-Y7OOW9NCrh2x6trdOjJuffFejnHpSiAfb2hEmp_uW-Xho2Q6YPhwemlyjWeJmtWT_ym5RTkC9FtXv_Hkp0mgqU3peRDcDgkcq-N5YDTeG76GbS3eQexqxSNtKGKoA==]
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Dear NLN Supporter,
"No" was the answer I received when I asked if lymphedema could be treated. My
first lymphedema patient came to me with a severely swollen arm. For nine years,
she endured daily discomfort and disability without hope for improvement. While
others were complacent, I became determined to give voice to her struggle. "No"
was not an acceptable answer. I decided to speak up and take action! In 1987, I
opened the first lymphedema clinic in the United States and a year later founded
the National Lymphedema Network. Others joined the cause and, together, our voices
changed that "no" into a "yes".
Due to the work of the NLN, significant progress has been made in the management
of lymphedema and lymphatic system disorders. However, lymphedema remains unknown
to many Americans. Even more concerning, many lymphedema patients still do not receive
adequate treatment. We need this to change. Consider giving voice to those suffering
with lymphedema by making an End of the Year contribution to the NLN.
The NLN GIVES VOICE to the lymphedema community in the following ways:

Doctors and Therapists model compression garments.

"My doctor didn't even know what lymphedema was; I had to explain it to him."
Spreading Awareness
For over two decades, the NLN has educated millions of people about lymphedema.
Every year, the NLN attends numerous medical meetings and events nationwide, outreaching
to healthcare professionals and patients about the importance of lymphedema awareness.
In addition, the NLN provides counseling and support to patients everyday through
our hotline, website, and educational resources.

New screening guidelines will help breast cancer survivors detect lymphedema earlier.

"No one warned me before my surgery that I could get lymphedema."
Setting the Standard for Treatment
Before the foundation of the NLN in 1988, there was little consistency in the treatment
of lymphedema, if treatment was even recommended. The NLN was and continues to be
instrumental in promoting consistent standards for lymphedema assessment and treatment.
This year, the NLN successfully worked with the National Accreditation Program
for Breast Centers (NAPBC) to have them add screening and measurement guidelines
for breast cancer related lymphedema to their standards. The NLN also continues
to foster new research and collaboration in the scientific community; many on our
medical & research advisory committees are actively working to find better treatments
and, one day, a cure for lymphedema.

A group of advocates met with Congressman Larry Kissell in Washington DC to discuss
HR 2499.

"Medicare doesn't cover the garments I need for treatment."
Advocating for Access to Care
Every day, we hear the frustrated voices of patients who cannot get the care they
need. No one should go without appropriate care; the NLN actively works to ensure
better treatment for all. We are working to pass HR 2499, The Lymphedema Treatment
and Costs Savings Act, which will extend Medicare coverage for lymphedema from any
cause. In addition, our Marilyn Westbrook Garment Fund (MWGF) continues to provide
garments for patients who otherwise would be unable to afford them.

1985- The first lymphedema patient I treated.

"Fifteen years ago, when I developed lymphedema, the NLN gave me the information
I needed to understand what was happening to my body. I continue to support the
NLN because I believe in their cause."
Give Voice
We are proud of our accomplishments over the years. Right alongside the NLN, are
patients, therapists, physicians, caregivers, scientists, industry partners, and
friends like you who support our cause. Together, we have shown that the voices
of individuals and communities can make a difference. These voices brought national
attention to lymphedema and improved care for countless people. Yet despite our
many advances, we still have a long way to go.
We are asking for your help. Please speak up and voice your support for the work
of the NLN by making a contribution today [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1b4j0lihVfnj8vITCHLUatFxPO7OlsLRQt8dl2fZYgFvHKH1T3y7_8iYRoXy-4mvdC_LzO5ILauK_XmZAb4C0g2EcphVEqMHgSHorOjRtHF55AyrcGS4aF2_i102PNcCQk=].
The NLN is a non-profit organization and your donations are tax deductible (Fed
Tax ID: 94-3068338). Just click here [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1b4j0lihVfnj8vITCHLUatFxPO7OlsLRQt8dl2fZYgFvHKH1T3y7_8iYRoXy-4mvdC_LzO5ILauK_XmZAb4C0g2EcphVEqMHgSHorOjRtHF55AyrcGS4aF2_i102PNcCQk=]
to make a contribution.
We are grateful for your continued support of the NLN. Give Voice. Give Hope.
Sincerely,
Saskia RJ Thiadens, RN
Executive Director, NLN
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