Lymphedema Treatment: National Lymphedema Network End Of Year Campaign

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National Lymphedema Network [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1bZdozG1ETMS1TaZEDxlSkJtz_Vtkx2Jla0JNdm5THHCDWczM-u6INO8ZUXbZJlVof_QMHaFksPlgbZEoPy8lNQ3BqulZttwO93W3woPAgxuA==]
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National Lymphedema Network
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National Lymphedema Network [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1bmp9DFWV11Imf-5MKnAjD-m2rag8NOgzrVUbSaeKtgTol_RgpPSKNWEgofxgW7KFKWHePbDGx1cqHtHemr0m-JmRFB3TlfHrE=]

Donate Now [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1b4j0lihVfnj8vITCHLUatFxPO7OlsLRQt8dl2fZYgFvHKH1T3y7_8iYRoXy-4mvdC_LzO5ILauK_XmZAb4C0g2EcphVEqMHgSHorOjRtHF55AyrcGS4aF2_i102PNcCQk=]
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Position Papers:

Diagnosis & Treatment of Lymphedema [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1bCuThhBixJ1l3gucXF3RX8r6lO_gWYx6vDjESotjMVaIxqhA8gM3hZO9b9tEfzk6l3nhah0SSRPsd5d1czn-aBnVNXpKvmOmBGA_qDhMWlUEGYIKnVeJ_DXEra1aVlc2B6TLOLZ-JhyA==]

New! Breast Cancer Related Lymphedema [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1atcI8NtfWnJPlPqp-3MBhvAnEnWvLzDOF5TQUqY_-bDJdte-Jm2MB_tB3NiOUTigD-81OIkAuzKyMXN0NjmBU78-Z1D8ZY463TL_argZMD9FphaQwzTtJbfMHItDgCnjc=]

Risk Reduction [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1ZdFfl-c9XDBGk8_ZDPX9yEcKhTgM4aIy4i7Tz-b1gHAD_C2HYOHZ3kjgem36Ciyo1W1n3lEAv4M6BAszw0Q7uSqi1CmBC5z0lwIcJ3atbvNWq7VR39uuK5CVwryWAfajYKjkDA7sVSrj5ronhD8iAwn-YNbG3kIQBA8FR9xaYM2zEA9h60MfiH1IXxXEgNfTQ=]

Exercise [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1a6X7s9AhfyBvoM2hKxaowNPh9UGzua-yfILHNj-2P84J75OgNgJo8L7wFo1BpyRK1cujgxOuv64vuOVnPRw1Ysy7MRY6BgYJlswye9W_7d1s_a60beML68_579DZuQRWrSL_8YWqP2ezjkAj7WZEAuUecqb2YZ8cr9NtjgCFjVpi9gudQj65-hsj46U91ALyI=]

Air Travel [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1Yam9ezdR3qq2FMbN-7bn1I8TfGj4iZ5XSZiHwFREEGt-C7zPKKsOx-8x6nuyvYDszbUYAM8hfMHpj-jzcx5QeOAIkV8Gn70JlAte8-GA84g8VbwE67r5rB-EkLRtF_qPmWWnlRXLXHtVimxOHdJfgj6VVRzFVgqGAEuXN7VVsQp9WAHjvV-6yycmSocWtV6n0=]
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Quick Links:
National Lymphedema Network [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1bmp9DFWV11Imf-5MKnAjD-m2rag8NOgzrVUbSaeKtgTol_RgpPSKNWEgofxgW7KFKWHePbDGx1cqHtHemr0m-JmRFB3TlfHrE=]
Special NLN Membership Campaign [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1YrfBgbbN1kb175ligzJ7Q0sPsckwYCiH5DLZtNTlp-ALmEBKZX9SpxCSBIg3bmfOo5bxuE_ANMFFCXLu9MmxR_mh1fa4XTXk882zmmFnbxKpnBY0hbNP03tlyhRH8gp7-ZIv3QH5eRlT7K_1ZuK_vZTqW6V7HusFk=]
NLN 2012 International Conference [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1ZXXpWb7KTSO0Fp-Y7OOW9NCrh2x6trdOjJuffFejnHpSiAfb2hEmp_uW-Xho2Q6YPhwemlyjWeJmtWT_ym5RTkC9FtXv_Hkp0mgqU3peRDcDgkcq-N5YDTeG76GbS3eQexqxSNtKGKoA==]
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Dear NLN Supporter,
"No" was the answer I received when I asked if lymphedema could be treated. My
first lymphedema patient came to me with a severely swollen arm. For nine years,
she endured daily discomfort and disability without hope for improvement. While
others were complacent, I became determined to give voice to her struggle. "No"
was not an acceptable answer. I decided to speak up and take action! In 1987, I
opened the first lymphedema clinic in the United States and a year later founded
the National Lymphedema Network. Others joined the cause and, together, our voices
changed that "no" into a "yes".
Due to the work of the NLN, significant progress has been made in the management
of lymphedema and lymphatic system disorders. However, lymphedema remains unknown
to many Americans. Even more concerning, many lymphedema patients still do not receive
adequate treatment. We need this to change. Consider giving voice to those suffering
with lymphedema by making an End of the Year contribution to the NLN.
The NLN GIVES VOICE to the lymphedema community in the following ways:

Doctors and Therapists model compression garments.

"My doctor didn't even know what lymphedema was; I had to explain it to him."
Spreading Awareness
For over two decades, the NLN has educated millions of people about lymphedema.
Every year, the NLN attends numerous medical meetings and events nationwide, outreaching
to healthcare professionals and patients about the importance of lymphedema awareness.
In addition, the NLN provides counseling and support to patients everyday through
our hotline, website, and educational resources.

New screening guidelines will help breast cancer survivors detect lymphedema earlier.

"No one warned me before my surgery that I could get lymphedema."
Setting the Standard for Treatment
Before the foundation of the NLN in 1988, there was little consistency in the treatment
of lymphedema, if treatment was even recommended. The NLN was and continues to be
instrumental in promoting consistent standards for lymphedema assessment and treatment.
This year, the NLN successfully worked with the National Accreditation Program
for Breast Centers (NAPBC) to have them add screening and measurement guidelines
for breast cancer related lymphedema to their standards. The NLN also continues
to foster new research and collaboration in the scientific community; many on our
medical & research advisory committees are actively working to find better treatments
and, one day, a cure for lymphedema.

A group of advocates met with Congressman Larry Kissell in Washington DC to discuss
HR 2499.

"Medicare doesn't cover the garments I need for treatment."
Advocating for Access to Care
Every day, we hear the frustrated voices of patients who cannot get the care they
need. No one should go without appropriate care; the NLN actively works to ensure
better treatment for all. We are working to pass HR 2499, The Lymphedema Treatment
and Costs Savings Act, which will extend Medicare coverage for lymphedema from any
cause. In addition, our Marilyn Westbrook Garment Fund (MWGF) continues to provide
garments for patients who otherwise would be unable to afford them.

1985- The first lymphedema patient I treated.

"Fifteen years ago, when I developed lymphedema, the NLN gave me the information
I needed to understand what was happening to my body. I continue to support the
NLN because I believe in their cause."
Give Voice
We are proud of our accomplishments over the years. Right alongside the NLN, are
patients, therapists, physicians, caregivers, scientists, industry partners, and
friends like you who support our cause. Together, we have shown that the voices
of individuals and communities can make a difference. These voices brought national
attention to lymphedema and improved care for countless people. Yet despite our
many advances, we still have a long way to go.
We are asking for your help. Please speak up and voice your support for the work
of the NLN by making a contribution today [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1b4j0lihVfnj8vITCHLUatFxPO7OlsLRQt8dl2fZYgFvHKH1T3y7_8iYRoXy-4mvdC_LzO5ILauK_XmZAb4C0g2EcphVEqMHgSHorOjRtHF55AyrcGS4aF2_i102PNcCQk=].
The NLN is a non-profit organization and your donations are tax deductible (Fed
Tax ID: 94-3068338). Just click here [http://r20.rs6.net/tn.jsp?llr=uwropkcab&et=1108334886924&s=8235&e=001UkV1H0PYN1b4j0lihVfnj8vITCHLUatFxPO7OlsLRQt8dl2fZYgFvHKH1T3y7_8iYRoXy-4mvdC_LzO5ILauK_XmZAb4C0g2EcphVEqMHgSHorOjRtHF55AyrcGS4aF2_i102PNcCQk=]
to make a contribution.
We are grateful for your continued support of the NLN. Give Voice. Give Hope.
Sincerely,
Saskia RJ Thiadens, RN
Executive Director, NLN
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