February 28, 2021

Lymphedema Awareness Month - March 1, 2021 Newsletter

March is Lymphedema Awareness Month
The National Lymphedema Network (NLN) is so proud to be the organization that initiated this global movement of increasing awareness of lymphedema. Our founder, Saskia R.J. Thiadens, advocated to make March 6 Lymphedema Day in honor of the day the NLN became incorporated as a nonprofit. Now it has grown to be known as World Lymphedema Day.

To celebrate and work towards our mission of increasing of awareness, we have planned an entire month of educational sessions intended for the patient
community. We want to let you know that we are here to work for you and to empower you with knowledge.

All webinars will be recorded and made available by the end of each day with the exception of a couple of sessions where the presenter requested otherwise.

This webinar series is complimentary and is our service to the community.
We look forward to interacting with you in the webinars.
Updated schedule below.
Program subject to change without notice.
End times will vary between 6:00 and 6:30 pm ET.
Each day will be a combination educational content on the topic listed, sponsored content, and time spent on updates on other lymphedema related topics, services, and/or organizations.
NLN 2021 Lymphedema Day Awards
There are many lymphedema leaders out there who make significant contributions to the lymphedema community, and we want to hear all about their great work. Tell us about the impact they are having on their local communities and nominate them so that they can have the chance to be recognized and acknowledged. Three nominees will be chosen and will receive an NLN certificate, complimentary NLN membership for one year, and complimentary registration to the 2021 conference. They will be given the opportunity to share their message in the next NLN Magazine. Self-nominations welcome. Nominations accepted through 11:59 pm ET on March 5. Awardees will be announced during our webinar on March 6, Lymphedema Day 2021.
New NLN Membership Structure
First and foremost, we would like to thank all NLN Members for their support and engagement. We are continuously working to build more and more value for your membership support. We are very excited to connect with you more closely and discover what you find most meaningful. To start, we have a new membership platform that was supposed to be launched January 20, however we were delayed because of complex integrations that needed to be set up. The new launch date will be March 3, where by the end of the day you will receive an email requesting that you reset your password. You will no longer need your NLN ID number as your email address will be your unique identifier. The new NLN membership structure is simpler compared to what it was previously and is as follows.

Supporter - $50
Member - $500
Organization - $500

The NLN supporter will be able to attend exclusive webinars and receive CEU certificates, have access to our library of videos and to our archive of publications, receive a discount to NLN conferences, receive a digital version of the NLN Magazine, and be able to participate in discussion forums.

The NLN member will receive the aforementioned benefits of the supporter however with the discount to NLN conferences being greater. Members will additionally be able to submit applications to the NLN Garment Program, drop in on NLN Office Hours for impromptu questions and clinical support, and be a part of focused lymphedema mentorship labs. We are mindful of the potential financial impact the pandemic may have had and we are extending a 50% discount for new memberships and membership renewals in 2021.

The Organization may join to be listed in our Lymphedema Directory. We are mindful of the potential financial impact the pandemic may have had and we are extending a 50% discount for new sign-ups and renewals in 2021.
Save the Date
2021 NLN Conference
A Mysterious Experience of Lymphology
Fri October 1 - Mon October 4


sponsored by L&R USA
Lymphedema Podcast Featuring L&R USA
Sponsored by Northern Light Health
Lymphedema Employment Opportunity
Northern Light Mercy Hospital in Portland, Maine is seeking a Lymphedema Therapist. The Lymphedema Therapist is responsible for direct patient service; clinical consultation with clients (and support systems as necessary) having lymphedema, lymphedema related issues, or breast health concerns. The lymphedema specialist may be expected to participate in community outreach initiatives including education of other healthcare practitioners and the general public. The therapist is expected to participate in continuing education within the scope of their profession and lymphedema specialty. The incumbent performs all duties and tasks in accordance with performance standards established for the job. Mercy Hospital developed the first lymphedema treatment center in Northern New England in 1996. Northern Light Mercy Lymphedema Care Occupational Therapists exclusively treat all forms of lymphedema and lymphedema related conditions with specialty training in head and neck lymphedema and breast cancer rehabilitation.
Sponsored by Megan McCarthy MS OTR/L CLT
Lymphedema Survey on Pelvic Wrap

"I have treated cases of genital and pelvic lymphedema and have had a tough time with compliance/willingness to be bandaged during the decongestion phase. I reached out to a woman who makes a pelvic and groin band out of neoprene and she made me a prototype of a pelvic wrap to try. It is working so we are now in the process of doing research to see if this is something to further explore and put into production. I would like to know if other therapists are interested in integrating such a wrap."

February 13, 2021

NLN's 2021 Lymphedema Awareness Campaign

March is Lymphedema Awareness Month
The National Lymphedema Network (NLN) is so proud to be the organization that initiated this global movement of increasing awareness of lymphedema. Our founder, Saskia R.J. Thiadens, advocated to make March 6 Lymphedema Day in honor of the day the NLN became incorporated as a nonprofit. Now it has grown to be known as World Lymphedema Day.

To celebrate and work towards our mission of increasing of awareness, we have planned an entire month of educational sessions intended for the patient
community. We want to let you know that we are here to work for you and to empower you with knowledge.
Program subject to change without notice.
End times will vary between 6:00 and 6:30 pm ET.
Each day will be a combination educational content on the topic listed, sponsored content, and time spent on updates on other lymphedema related topics, services, and/or organizations.

Join the Faculty
There is room to welcome new faculty to speak on some topics. We are open to inviting confident speakers who are passionate about lymphedema, clinicians who believe in the power of educating patients, healthcare professionals who want to have a lasting impact on the lymphedema community. If you fit this profile and are interested in being a part of the National Lymphedema Network’s 2021 Lymphedema Awareness Program, please click on the button below.

Become a Sponsor
There is opportunity to join the program for NLN's 2021 Lymphedema Awareness Month by sponsoring time. Sponsorship is $750 for an increment of 15 minutes. If more than 15 minutes is sponsored, the time will not necessarily be adjacent to each other. We will work together to find the best place to include you in the program, and we look forward to connecting you to our lymphedema network.

Sponsors of the 2020 NLN Conference will be offered some time without additional sponsorship, and en email with details with be sent 2/14/21.

February 5, 2021

Feb 5, 2021 NLN Newsletter

NLN Highlight on COVID-19 Vaccination Injection Site
Thigh Is an Alternative
It is encouraging that more and more people are getting vaccinated and becoming protected against COVID-19. We have received many inquiries regarding the injection site. We would like to point out that according to the CDC, the thigh is an alternative injection site. You can find this in small print on the right lower corner of page one of the guidelines for both Moderna and Pfizer. This is applicable for people who have lymphedema and/or lymphedema risk in both arms.
Update from a Collaborating Partner
Venous Symposium


Venous symposium is the premier international conference on issues and treatment related to vein pathology. This symposium delivers practical education and updates on the current knowledge and management of venous disease.
Lymphedema Employment Opportunity
Easton, Pennsylvania
Be part of an exceptional health care experience. Join the inspired, passionate team at Lehigh Valley Health Network, a nationally recognized, forward-thinking organization offering plenty of opportunity to do great work.
job posting sponsored by
COVID-19 Vaccines - Mention of Lymphedema
Fred Hutch - Jan 2021
... Patients [with Cancer] and the COVID-19 Vaccines
Webinar Hosted by Magenta Sponsor medi USA
The Advanced Fitting Webinar:
Custom Measuring Techniques A to Z


Thurs Feb 18, 2021
3:00 - 4:30 pm ET

Jennifer Jagielski
CWCMS - Sr Clinical Education Manager -Lymphedema / Wound Care-medi USA

Webinar Hosted by Magenta Sponsor JOBST
Advanced Compression Workshop with Guenter Klose
Tues Feb 23, 2021
1:30 - 5:30 pm ET

Guenter Klose
MLD/CDT Instructor
Webinar Hosted by NLN for NLN Members
The Chicken or the Egg:
Lymphedema Therapy & Wound Care

Tues Feb 23, 2021
12:30 - 1:30 pm ET

Frank Aviles
PT, CWS, WCC, FACCWS, CLT
MLD/CDT/Wound Care Instructor

Registration will be emailed to
active NLN Members next week.

Lymphedema Event
Power Lymphatics
March 4 – 6, 2021
Registration closes March 1

Research Update
ASCO Reading Room - February 2021
Alphonse Taghian and George Naoum on Axillary Surgery, Nodal RT, and Lymphedema:
Suggestion that Main Driving Factor Remains Axillary Dissection, Not Radiation
Research Update
Science Codex - February 2021
How Blood and Lymph Vessels Remain Separated after Development

Disclaimer: Inclusion of advertisements in this newsletter does not constitute the National Lymphedema Network's endorsement, guarantee of quality, or claim of value made by the manufacturer, distributor, owner, or service provider. The National Lymphedema Network aims to simply connect patients and health care professionals to information they may find useful when exploring treatment options, educational opportunities, and current information related to lymphedema and related conditions.The views and opinions in articles included in this newsletter, which are those of the author(s), do not necessarily reflect the official policy or position of the National Lymphedema Network. The information is provided solely for general education and informational purposes. Use of the advice and information contained herein is at your sole choice and risk. You should not rely on this information as a substitute for, nor does it replace, professional medical advice, diagnosis, or treatment. Always consult your physician or healthcare provider before beginning any nutrition or exercise program. If you choose to use this information without prior consent of your physician, you are agreeing to accept full responsibility for your decisions and agreeing to hold harmless the National Lymphedema Network.