December 11, 2018 Newsletter

Here's What's New!

December 11, 2018 Newsletter Thank you so much to our donors and members! Your extraordinary outpouring of support made it possible to bring back our garment program and offer some new programs. We had two soft relaunches of the garment program to test our new application process, and garments from these initial requests will soon be distributed. All applications are now electronic and accepted only through the garment portal on our website. We will need one more soft relaunch to confirm our workflow and this is scheduled for January 14, 2019. We are also working to refer to this program as the Marilyn Westbrook Garment Program (instead of Fund). This is to clearly indicate that the program distributes complimentary compression garments and not funds for reimbursement. Thank you so much for your support. Thriving with Lymphedema To roll out our Thriving with Lymphedema program we had a photoshoot in New York City on November 11, 2018. Five amazing women modeled their compression garments, but what we captured was their confidence, beauty, and courage. We are considering the best forum to feature these amazing photos and will let you know via our newsletter and website once everything is confirmed. Right now, Congressional Leaders are making their final decisions on  which bills will be passed this year. Please call the following offices, daily if possible.  Note that there are similar but separate scripts for the House and Senate. * House Majority Leader, Representative Kevin McCarthy: 202-225-2915 * House Speaker, Representative Paul Ryan: 202-225-3031 * House Ways & Means Committee Chairman, Rep Kevin Brady: 202-225-4901  * Senate Finance Committee Chairman, Senator Orrin Hatch: 202-224-5251 * Senate Finance Committee & LTA Co-lead, Senator Chuck Grassley: 202-224-3744 * Senate Majority Leader, Senator Mitch McConnell: 202-224-2541 (DC) or 270-781-1673 (State Office) HOUSE Phone Script "I'm calling to urge Representative [name] to include the Lymphedema Treatment Act (H.R.930/S.497) in the omnibus spending bill or put it on the Suspension calendar for a vote. With 449 cosponsors, this bipartisan and bicameral bill is the most widely supported healthcare bill in Congress. Millions of Americans with lymphedema - the majority of them cancer survivors - need this bill passed now." SENATE Phone Script "I'm calling to urge Senator [name] to include the Lymphedema Treatment Act (S.497/H.R.930) in the omnibus spending bill or use the "hotline" procedure to bring it to a vote. With 449 cosponsors, this bipartisan and bicameral bill is the most widely supported healthcare bill in Congress. Millions of Americans with lymphedema - the majority of them cancer survivors - need this bill passed now." Thank you for your advocacy during this critical time!  LymphedemaTreatmentAct.org Featured Sponsor Tactile Medical has an informational section on lymphedema on their website. Learn more. Complimentary Webinar TODAY at 1:00 pm ET. Register here Dr. Mackenzi Pergolotti will discuss how to critically read research. If you can't make it for the live webinar, register and you will have access to the recorded session afterwards. Friday, December 14, 2018 5:00-6:30 pm 440 Lafayette Street, NY, NY Room 4A Register here The next NLN Brain Chain session will focus on Anatomy & Physiology of the Lymphatic System. If you registered for the last session but couldn't make it because of the rain, you are welcome to join this session compliments of the NLN. www.lymphnet.org ‌ ‌

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