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National Lymphedema Network
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Lymph e-Channel vol. 8
August 2013
In This Issue
· Welcome
· Therapist's Article
· New Product
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Patients: We want to share
your stories!
Don't forget to send us
a short paragraph of
your experiences with lymphedema and a picture for us to publish!
All submissions should go to
robin@lymphnet.org [mailto:
robin@lymphnet.org].
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Help Spread Awareness!
The NLN is creating FREE Lymphedema Educational Kits for all patients at risk for
lymphedema. Please help us raise money for the campaign by creating your own page
and spreading the word. It only takes a minute!
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NLN's Support Community
Looking to correspond with others who have lymphedema? Look no further than the
NLN Lymphedema Support Community sponsored by
inspire.com
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Position Papers
Exercise [
http://r20.rs6.net/tn.jsp?e=001zDva0NG9B3dHqztQ5QTVPF-SFQjaBNWW2s2VRJKIrWU2JPEKjAKDaH_R6KI8KXaxBUZyqJ0R0T6mlbI5xmZ9FPHu9-wZhbIlq-NF492r0ZcKpdCrvjREQKgU47TAqkYVskJuxjtJcZFAZK0p8mAtxA==]
Risk Reduction [
http://r20.rs6.net/tn.jsp?e=001zDva0NG9B3f-cmMNlx4uZZJi25GPD-fpwWbLkqB-RJmMmWzRygDkjqrvUgr2FEqiMvakQbJC1S5vX-gaVKSkPrVdqdGofCULQiisqw323eKz0OfDhJjB5XZbY5_F0-tKy03sj7f8LrgEIoSV3cJmAB7H6MnOSpZ1V4rfUXG-38Y=]
Diagnosis & Treatment of Lymphedema [
http://r20.rs6.net/tn.jsp?e=001zDva0NG9B3e4Vy_aTJR1PjHf85YDs3jq-xe8pzIhrPqfYHZw6-AiuM1GnlJR3iGCrLY718QREBbMMRd2gSJjB1ddNdlDejp8KZ8-CaBjWAQSzZkso2WozTcUZjpIu8lftVW40lAyn9lSMrnc0r_Hp2_Z7yawGpM-]
Breast Cancer Related Lymphedema [
http://r20.rs6.net/tn.jsp?e=001zDva0NG9B3fiMKm9kTldZgKyifv9hg26cScb_rzaL6UE_yqTidHEKYAPRH06h3lm4Zin1Qr6Afjvdxx27nAFhseOMlOhVq-tWmrBafd2F6Xn7d3cOIvoL0KFZL5Gw9q4fK1eH65mUzq_yKUyA7m4kA==]
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Quick Links
National Lymphedema Network [
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Welcome to Lymph e-Channel
Dear Friends and Colleagues,
Greetings from the NLN Headquarters. First and foremost it is with great pleasure
that I introduce you to our two new staff members, Liz Cheng and Kelly Morrell.
Both joined the NLN in May and we are thrilled to have them on our team.
Liz Cheng, our Database Manager, came to the NLN in May. She handles all our affiliates
and general members, and is thrilled to launch our new affiliate online renewal
application process this week. Liz is also the Exhibitor Liaison for the 2014 NLN
Conference and be in charge of registration. You will enjoy working with her.
Kelly Morrell, our new Outreach and Office Coordinator, joined the NLN shortly after
Liz. She manages the NLN Info Line, communicates with patients and handles the shipping
of NLN merchandise and information. She is also the Editor of LymphLink and Committee
Liaison of the various NLN Committees, as well as Saskia' s right hand, handling
numerous administrative tasks. She is a busy person but always available with a
big smile.
This issue features the condition of Lipedema, characterized by symmetrical bilateral
swelling in the lower extremities. At this point few healthcare professionals have
any knowledge, and often it is misdiagnosed. Linda Ann Kahn, a well-known Vodder
trained therapist, shares her knowledge and expertise with this patient population.
She provides excellent tips for treatment, including nutritional components. Many
thanks Linda.
If you have a unique case study or new product you like to share with the LE community
at large, please contact the NLN office. We continue to learn from each other and
love to hear from patients or therapists alike. Enjoy the remainder of the summer.
Saskia R.J. Thiadens R.N.
Executive director and NLN staff
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Integrative Treatment of Lipedema
by: Linda Anne Kahn HHP CLT-LANA CMT
Lipedema is a chronic inflammatory disease of complex causes, many of which the
medical community does not understand. It occurs almost exclusively in females and
is characterized by symmetrical flabby swelling of the legs. There is an abnormal
accumulation of fatty deposits starting in the hip region and ending at the ankles.
The arms and abdomen can also be affected.
Lipedema is a poorly understood condition, and health professionals and physicians
may dismiss the patient and consider this a problem of weight control.
Individuals with this condition are oftentold they are overweight and counseled
that they eat too much or are not following their prescribed diets. This uniform
approach to the problem can convey a lack of understanding. It can result in anxiety,
frustration and a feeling of helplessness on the part of the person who is suffering
from lipedema. In fact, this condition is a genetic abnormality and the obesity
is not the patient's fault.
The treatment for lipedema is complex. Individuals with a diagnosis of lipedema
require a comprehensive plan of care, including physical and psychological support,
to help them overcome the many problems that accompany the condition. They should
also receive the nutritional guidance that will help decongest the system and assist
in minimizing additional weight gain.
Why do I swell?
* Swelling occurs when there is interference with the flow of lymph fluid. This
interference can produce edema, which is another name for swelling.
* Excess fatty tissue will impact the lymphatic system by disturbing the normal
flow of lymph fluid.
* Fat cells can contain toxic material such as dioxins, mercury and other heavy
metals that contribute to the inflammation
* Inactivity further exacerbates the condition as the pumping activity of the muscles
to move fluid is reduced, which can result in increased swelling.
* Typically, lymph fluid is absorbed from the initial lymphatic vessels in the tissues,
enters the lymphatic system and is pumped upward. Constriction of the lymphatic
vessels by the increased fat deposits restricts absorption and blocks the return
flow of the lymphatic vessels.
Treatment of lipedema
* Manual lymph drainage (MLD)- This form of massage utilizes gentle, rhythmic pumping
movements to stimulate the flow of lymph around blocked areas to healthy vessels,
where it can drain into the venous system. This can help to relieve pain and prevent
fibrosis (hardening of the soft tissues).
* Compression- The use of stretch bandages or custom-fitted panty hose, panties
and/or spandex shorts increases tissue pressure in the edematous legs. This can
decrease the re-accumulation of fluid and create a significant reduction in adipose
tissue
* Exercise- Regular activity and exercise helps reduce fluid buildup, increases
mobility and maintains or improves function. Rebounding, whole body vibration, walking,
yoga and swimming should be included.
* Deep Breathing- Learning how to correctly perform deep breathing exercise helps
to move lymph fluid by stimulating the vessels in the abdomen that transport the
fluid.
* Diet - A diet that includes nuts, seeds and foods high in omega 3 fatty acids
is considered to be helpful in controlling inflammation.
The foods you eat play an important role in how you feel. Junk, processed and fast
foods contain too much sugar, salt and white flour which can aggravate inflammation.
Avoid red meat, as it contains arachidonic acid, which in excess could make your
inflammation worse.
Try to follow a Mediterranean diet as an anti-inflammatory dietary pattern. This
diet consists of fruits and vegetables, nuts, olive oil, beans, legumes and fish.
It is moderate in alcohol and eliminates processed meat, refined carbohydrates and
whole-fat dairy products.
Fish oils are thought to generally decrease several markers of inflammation. Omega
3 fatty acids are found in high levels in fatty fish, such as mackerel, lake trout,
herring, sardines, albacore tuna, wild salmon and halibut.
Dietary sources of the omega 3 fatty acid alpha-linolenic acid include flaxseeds,
chia seeds, walnuts, pecans, pumpkin seeds, hemp seeds, soybeans and some dark green
leafy vegetables. Omega 3 fatty acids may also reduce the risk of obesity.
Incorporating medium fatty acids (MCT) into the diet can help patients with lipedema.
They are easily absorbed and unlike other fats, which are stored in the adipose
tissue, MCTs put little strain on the digestive system, provide a feeling of satiety
and give a quick source of energy. Animal and human studies have shown that the
fast rate of oxidation of MCFA leads to greater energy expenditure (EE), resulting
in less body weight gain and decreased size of fat depots after several months of
consumption. Pure virgin cold-pressed coconut oil and Caprylic acid are medium
fatty acids
Conclusion
Patients should continue on this multifaceted program to prevent the condition from
getting worse, as the disease can progress to lymphedema if left completely untreated.
It is important to seek out a qualified and caring therapist to support and encourage
treatment.
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JOBST® Elvarex® Soft
As the experts in the field of lymphology, BSN medical developed JOBST® Elvarex®
Soft custom-made for lower extremities and for the arm. The unique, knitted fabric
of JOBST® Elvarex® Soft is made of soft textured yarn. This specialized yarn combines
skin-protecting softness and excellent breathability. It is particularly well-suited
for patients who have sensitive or fragile skin.
Latex-free JOBST® Elvarex® Soft is very comfortable to wear, as well as easy to
don. The inner side of the seam has been designed to be particularly soft, though
a new construction using specialized sewing yarns. This makes the inner side of
the seam of JOBST® Elvarex® Soft both smooth and gentle on the skin.
Jodi Winicour, PT, CMT, CLT-LANA with Longmont United Hospital and instructor with
Klose Training & Consulting states, "I have used Elvarex soft for my lipedema patients,
as well as for my older patients with milder lymphedema who have fragile skin and
they love the fabric. They find it to be very comfortable and easy to don and wear.
The fabric also transitions nicely from large to smaller regions, or vice versa
and is nice and flexible at the knee and elbow."
Now available in Capri and Bermuda!
The combinations of Capri/Knee Highs and Bermuda/Thigh Highs that you love in traditional
JOBST® Elvarex® are now available in JOBST® Elvarex® Soft. These two piece garments
are easier to don for those patients with limited range of motion and help with
long-term compliance.
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National Lymphedema Network, Inc.
116 New Montgomery Street, Suite 235
San Francisco, CA 94105
Hotline: 1.800.541.3259
Tel: 415.908.3681
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National Lymphedema Network | 116 New Montgomery St. | Suite 235 | San Francisco | CA | 94105